We started out alright this morning but the day got rockier as it went on. And I HOPE we are finished with everything but sleep for the rest of it now. J slept, sat in his red chair, and sat on the edge of the bed again this morning and did well. But.
His heartrates and
pressures have been higher today, his saturations have been lower, his
lung haven't sounded as great, and he is having some
green/yellow/blood-tinged secretions out of his trach. Yesterday we
sent cultures and so far nothing has grown. It could be a virus or
something else that we will never have the answer to. My child is an
enigma more often than not.
This afternoon and tonight he is
finally stooling and we are finally having a fluid negative day. If
only it didn't also mean that he is having cramping and stomach pain.
This evening it was so bad that he was actually crying real tears as he
writhed around and his stomach rolled. We gave him a ketamine bolus and
it lasted about 30 minutes. It should last waaayyy longer than that.
His heartrates were still up in the 190's and he was still writhing in
pain and it still felt like an alien was going to pop out of his stomach
and then he pooped again. It gave him a minute of relief and he
started right back up with the rolling belly, pain in the eyes, high
heart rates. We have him chlorol and he also had benadryl (to
pre-medicate for platelets) and a fentanyl bump. 30 minutes after all
of that, he finally fell asleep. I hope and pray he can sleep all night
We didn't get a chance to talk liver today with any of
the docs. Maybe tomorrow. Please pray for J to have a pain-free night.
I'm going to try to go to bed now so I can get up with him whenever he
needs his momma. Good night, my friends.