The ultrasound yesterday showed an epididymitis and a hydrocyl but no hernia. I haven't seen the urologist today but I'm sure he/she will come by sometime in the next day or so. From what I have read, the epididymitis can be very painful. Our Infectious Disease specialist was surprised to hear he had that with all of the antibiotics J has been on. Hopefully it will clear up soon.
The CT scan went well this
morning; Jameson was on best behavior. I think he liked being awake
while we rolled down and back. During the procedure he was on propophol
and he woke up well before they even got him off the scanner. This
child chews through his sedation! Our SuperDoc looked over the scans
and said there isn't much ascitis in his belly. His growing belly is
all bowel and liver. His liver is huge. Not quite sure why, but J just
had an echo cardiogram done to make sure the enlarged liver isn't a
result of heart problems. Haven't heard back yet.
hematologists/oncologists will look over the scans as well and see how
the lymphangiomatosis is doing as well. It is too early to really see
any differences from radiation, but maybe we can find out something from
the scans that will be helpful and hopeful.
transfused this morning with platelets, packed red cells and chryo.
Part of the reason his heart rate was up yesterday was because he needed
blood. It helped and now he is sleeping in the 120/130's. Much
He is still having bouts of pain and cramping when he
stools and he is still passing tissue. The bumps only work so much. I
feel so bad for my sweet little boy. It is hard to watch him have pain
and not be able to do anything about it. I just pray Jesus stays in
that bed with him all of the time. Thanks for checking in. I will be
sure to update when we get more info. God Bless!!