Friday, October 15, 2010
We sat down with J's team today to discuss the MRI and the plan from here. Basically the MRI didn't show anything to be much worse, but nothing is better either. Plain and simple the drugs aren't working. We are discontinuing the interferon and starting back up on the celebrex and also starting up some experimental drugs. On Monday Jameson will get a dose of Avastin(I hope I'm saying/spelling the right drug here). There is a 20-ish% chance of developing a brain bleed from it but at this point it is worth the risk. This is pretty much the last hope we have of turning this around. There was a case in Germany where a very sick little guy became well and lived for 27 months without any lymphangiomatosis flare ups after one dose of Avastin and we hope and pray this works for Jameson. We are praying for a miracle and keeping Jameson as comfortable as possible. Thank you for your continued support and prayers. Thank you and God Bless.