No CT today, but it probably worked out for the best. Just as the were about to go on the road with the entourage, they found out the CT Lab had no power/lights. Instead, our SuperDoc went to work with the afternoon plan: removing the non-draining left chest tube and sticking a needle in the left effusion and pulling off fluid. The old left chest tube wasn't that old- it was the one put in for his pnuemothorax and it had never drained much and probably did nothing but irritate him so good riddance, chest tube! His left effusion was bigger this morning and needed some draining since it was affecting his ability to breathe so she stuck a needle in his chest and pulled off about 140mL of chyle(the fluid). He is now satting much better but he is still on 70% O2. His post needle-drain xray looked better but they are holding off on the CT until he is more stable.
On the infection front, Jameson has not
gotten worse, he may even be a bit better. His fever has been down a
bit and he hasn't had tylenol since 3 am. The cultures sent out haven't
grown anything yet so we don't know what we are fighting. His white
count was way up this morning, almost all nutrifills(90%).
now heading into his pentabarb coma today and off all other pain and
sedation drugs. The EEG machine is monitoring him continuously and a
neurologist will be coming by sometime to check on him.
is going to put in an Arterial Line shortly to continously monitor his
blood pressure since it is still low and he's still needing the meds to
pop it up.
Hubs and I finished our trach care class in record
time. Suctioning and cleaning the trach on a fake, totally still baby
was easy! So was the CPR. I have a feeling by the time we will be
trying out our new skills on J, it probably won't be so easy. Just
getting a diaper on him is challenging enough when he is well! They
recommend swaddling hands in a blanket while doing trach care, I'm
thinking handcuffs will probably come in handy...
So, maybe CT
tomorrow if J feels up to it. Radiation probably won't start until the
infection is treated and long gone. Always busy, always
changing...hopefully only for the better from here on out! Thanks for
checking in and praying. Love, Meghan
out, they are starting him on IVIG to boost his immune system and they
are about to get a culture from his lungs through blind lavage. Should
be safer and easier than a bronchoscopy right now.