So the plan seems to change daily.... The pentabarb is working well
but he needs lots of bumps and he is pretty much maxed out on the other
pain meds so there is talk of putting him in a medical coma with the
pentabarb for five days and take away all of his other pain and sedation
drugs to reset his receptors. That way they can start back up with the
versed and fentanyl at lower doses again. We should find out later today
when the pain doctors come in if that will happen and when.
The
lymphangiomatosis plan is changing again too. We started him back up on
interferon today. He is also getting celebrex, steroids, and curcumin
(tumeric, yes a spice). We may hold off on the Avastin for a week while
he is in the pentabarb coma because once he gets the avastin he won't
be able to heal for a while. We want to give his nasty trach site
another week to heal first. Avastin works by stopping new blood vessels
from forming, which is what will hopefully halt the lymph production,
but it works on everything and that is why healing is also halted.
He
is also on insulin now because the steroids have raised his blood
sugar. And he just got more platlets. Thanks to everyone who gives
blood yet again! I think that is it for the med changes...
But we
are in flux so this could all be changing again- who knows?! What I can
tell you for certainty is that we will be watching football and
cheering for our Vikes. Skol Vikes!! J can't clap but he's cheering
'em on in heart! God bless!!
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