We are still having saturation issues. J is on 100% O2 and still
desatting. While he isn't setting the alarms off he still hasn't gotten
above 89 today. Crappy.
Even with colon cleaner he still isn't
having great poop either. Right now he isn't stable enough to go to
radiation so we've rescheduled for 4 pm today and the goal of the day is
to get him stable and satting at least above 85 consistently and not on
100% O2 so we can keep his appt. His girth is still up- 61 cm. We are
checking abdominal pressure right now and will probably be getting an
ultrasound to see if there is a fluid pocket the abdominal drain can't
get to. If so, he may take a quick trip to the OR to either get a belly
tap or another belly drain put in. Joy. Okay, just got the pressure
and it was fine, so this plan is on the back burner...we are going to
turn him on his tummy right now to see if that helps and try to pull
more fluid off the belly drain.
Today is green day at school for Little Man and we are both decked out in some great Irish green. I'm
praying for the luck of the Irish to be with J today. We know that we
have a great medical team and powerful medications and procedures to
work with but only God can save. Ultimately, His plan will prevail and
His plan is good. We cannot praise Jesus for the good in our lives and
curse him for the suffering. He is the same God today as He was the day
he gave us our Baby J. And I am thankful for that. I praise Him in
this storm and pray that he sustains our family, heals our Jameson, and
that all of this suffering and pain will ultimately glorify Him. And
today we have extra prayers for lungs to work. Thank you for praying
with us and for us.
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