Jameson has had a big morning! Daddy actually held him in his arms without even sitting in a chair. I think they both adored it equally; Jameson gave his first big smile since we've been in when Daddy put him down- almost like saying "I loved it, Dad!" It was the most beautiful thing I've seen in a long time. Then he watched Toy Story 3 in his little red chair. Okay, he slept through most of it, but I know he loved it. Then PT came by and we got him sitting up on the edge of the bed! He doesn't have the torso strength yet, but he was able to hold his head up by himself and move his arms and arch back a bit. He continues to absolutely amaze everyone with his strength and feistiness. I am SO proud of my boy! After that he fell asleep and slept through Santa's visit, but we can show him the picture later. :)
The liver is the biggest concern of the week. The echo turned out fine and today he had a dopplar of the liver and the flows were all fine. His liver function is fine, but it.is.huge. And it got huge fast. No one understands what is going on with it. Could it be a drug toxicity? Or a delayed reaction from radiation? Or could the lymphangiomatosis be the cause? Those are just a few of the many questions our team of doctors is researching and mulling over. SuperDoc really wants to get a biopsy to see if that tells us anything about it. We aren't so sure about that yet and need to think about it and hear a little more info from our specialists first.
His girth and weight are still way up. He is up to 17 kilos and his dosing weight is 15 kilos. (They actually just upped that yesterday, the original dosing weight when he was admitted was 13 kilos.) He hasn't been peeing well and had to get the catheter put back in last night. It is helping but he is still fluid positive again today. He hasn't stooled since yesterday. Hopefully we can empty him out a bit and get that girth and weight down. Please pray about that liver.
Hubs and I are humbled and grateful for your continued support and prayers and love thoughout this rocky time in our lives. We appreciate each and every prayer you say for our amazing Jameson and for our entire family. Thank you so much and may God bless you as well.
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