Wednesday, November 24, 2010

Jameson likes his ketamine; it seems to give him that little something something to take the edge off, although I think he may be watching purple elephants dancing on the ceiling. He is dazed and confused for sure.
The GI doc came by yesterday and gave us a few more drugs to hopefully help with the abominal cramping and pain that amazingly still breaks through his arsenal of drugs. He is now on octreotide to help with the diarrhea and lomodal to help with the cramping. Feeds are still on hold but he may start trophic feeds again tomorrow or the next day. He'll be the only turkey in the room tomorrow. At least he is still allowed to have his lollipops and he loves them.
His NJ clogged and needed to be replaced yesterday. I was hoping the nurse would let him yank it himself but that would only reward sassy behavior. :) Maybe when he doesn't need it anymore.... The new NJ took forever to get in; J just wasn't cooperating. But we did get it in so he can at least get his oral meds. He is still bleeding out of it but the GI doc thinks scoping it would be too much of a risk at the moment; radiation has made everything inside very fragile. And he must not be losing too much blood because his platlets and hemoglobin were both surpisingly good this morning. I can't remember the last time we've gone 2 or 3 days in a row without getting something transfused. If you are looking for an inexpensive, yet priceless gift to give this season, please consider donating blood.
On Sunday Hubs and I both had a chance to hold Jameson. He was in a lot of pain that day and we were all hoping extra cuddles might help. I hope you enjoy the picture of me holding Jameson. I haven't held my baby since the beginning of September and it was wonderful and scary all at the same time. Then he got too hot and pooped so cuddle time was over. Hopefully we'll be able to hold him again when he is more comfortable.
Thank you for your prayers and love. We wish you all a Happy Thanksgiving!

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